~weekend~ Over the weekend we made some interesting and mostly positive observations. His language is improving every day, we hear more words from him and some new sentences. Lot’s of requesting like. “I want up” to be picked up and,“ I want hug”, “I want tickles”, “I want drink” “I want eat”. He had learned the “I want ____. “ sentence structure a while ago at his ABA based early intervention program, but was rarely using it and not without prompting or PECS. Now he’s saying- sometimes shouting- his wants to us spontaneously and everyday! He has been pairing words like never before, like “let go!”, “wait for me”, and “stop it!”. He has been more tolerant of my singing to him and joined in a little bit on a few circle time songs we practiced over the weekend. His father notes a change in comprehension as well, he’s been able to ask Sevyn to go get his shoes and Sevyn came back with shoes! His Dad has also been seeing potty time and diaper changing getting easier with less resistance(hitting and kicking).Sevyn has even laid down on his own to have his diaper changed a few times recently! Sevyn has yet to use the toilet, but sits on it everyday. On Sunday he went into the bathroom and was undressing himself so his dad thought he wanted to use the toilet, but he actually was getting ready for a bath! When placed on the toilet he said "no bath time!". He got his shirt and pants off and was working on the diaper and shoes! So he’s starting to help undress and dress himself and seems more interested in potty time. The not so awesome things we saw over the weekend were these increases in obsession over foods and television. Sevyn has been asking us for everything he cannot have, he wants juice all day long, asks for stuff he hasn’t had in long time like cheese, bread, ice cream, and candy. We have been making lots of changes and being stricter about GFCF and trying to reduce sugar as much as possible. Now he is craving all of the things he cannot have and throwing huge tantrums. Juice and fruit are only served once a day and this is very upsetting to him. He’s not happy about being served water all of the time now. We have to be so careful about him getting any gluten and that’s very hard when his little brother still eats it and wants to share with him. We would like to go GFCF as a family, but haven’t quite figured that out yet. There have been no infractions so far that we know of and we’re trying to keep it that way, much to Sevyn’s disappointment. He’ll get used to it though, it just takes time to adjust. He has also been very obsessive over sponge bob, the CARS movie and wanting to watch the television all the time. We limit TV time and always have, yet he seems to think if he screams enough that will change. we encourage him to play outside a lot and that helps with this sometimes. I'll take him for a walk around our block or make some art with him to distract him. His diapers looked great though! We know the diet is working for him! He had two formed bowel movements on Saturday and one on Sunday- both were normal and without that septic tank smell! His pee still has a very strong ammonia smell and we have been pushing more water, but he has no rash and no diarrhea! He has been sleeping really well, we are so grateful to get some rest! He woke up twice on Saturday and once on Sunday and only for drinks on water. He slept 6 hours total on Saturday and 7 total on Sunday. It was a good weekend for lots of sunshine and floor time play!
Session 12 of HBOT with Sevyn
(diagnosis autism age 3)
6-29-09
We had another afternoon session today and it was fairly easy going. Sevyn seemed very awake today and well rested. He was really excited to get in the chamber again after the break over the weekend. He let me put the mask on him right away, but refused to put it up over his mouth. I tried talking into it as if it were a walkie talkie, but he wasn’t interested and I settled for him wearing it around his neck. This dive was really great as far as getting to full compression. Dr. Matt’s assistant showed me that I can pull on Sevyn’s earlobes a bit during compression and that helps him pop his ears. He tells me “that tickles!” when I do it. It a really good way to make sure his ears are popping and he likes it. At full compression we laid down together and watched a Word World DVD called rocket to the moon. He like it a lot and we talked about our rocket and how we were going to the moon. This series is really neat because all of the characters are letters too so we learned about the alphabet in the chamber today. His focus was awesome, he was very interested and I was very proud of him! He let me take a few pictures of him and got excited when his little brother was pushed up to the small observation window to visit saying "there he is!" At the end of the hour he tolerated the DVD ending and was cooperative about sitting up to depressurize. He ate his fruit leather happily- the only time he get’s these is to pop his ears in the chamber because they are high in sugar. Right before the chamber was opened Sevyn began to sing "good bye rocket". I tried my best to film it but my camera kept dying. Despite my need for fresh batteries I did manage to film a few seconds of him singing. He said “We did it!” again today when being lifted out of the chamber by Dr. Matt. On the drive home he talked about the rocket this time and had several new words in his story from the DVD we watched like “moon”, “frog”, “build it”, ”letters” and “comet”! His little brother wrestled with him and he responded in an appropriate playful way. I filmed them rolling around and laughing with each other for at least 20 minutes! It’s so awesome to see them so happy together. After about 20 minutes Sevyn got a little to excited and rough with his brother though and we had to separate them, but before that they did great. At dinner Sevyn ate most of his veggies and all of his Quinoa, and after that he brushed his own teeth! He didn’t poop today but the greens he ate will help with that. HBOT and GFCF may not be what's best for every kid, but it's what Sevyn needs right now. All the hard work is paying off! Even if he never made an inch of progress from who he is today, I couldn't be prouder of how far he has come.
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